PKU
Egoo.Health attended the 33rd Annual ESPKU conference
in Izmir, Turkey during November 2019 where we presented the Egoo Home System for the PKU community.
Patients, clinicians and PKU organisations were very enthusiastic about our product, confirming our belief that
the Egoo Home System can provide a higher quality of life
for people afflicted with PKU. Egoo.Health is focusing its efforts on finalizing the capsule for PHE measurement, and the CE-mark for home use. This will enable direct sales to patients in Europe.
FACTS ABOUT PKU
Phenylketonuria (PKU) is a rare, inherited disorder that causes an amino acid called phenylalanine (PHE) to build up in the body. PKU is caused by a defect in the gene that helps create the enzyme needed to break down PHE. PKU occurs in all ethnic groups, with an estimated prevalence
of 1 in 10,000 live births. Approximately 38,000 in Europe and 100,000 worldwide currently live
with the disease.
Without the enzyme necessary to process PHE, a dangerous buildup can develop when a person with PKU eats food that contains protein. This can eventually lead to serious health problems and brain damage.
PKU can be managed through a very strict lifelong diet that limits phenylalanine, which is found
in many foods that contain protein. It is a very difficult situation to manage, however. Another limiting factor is that currently, it isn’t possible for patients to test their PHE levels at home and make the necessary immediate adjustments to their diet. Instead, they must take weekly blood samples and wait several days for the results, during which their values might have changed
yet again.
"We anticipate that the Egoo
Home System will offer a sense
of security and flexibility –
limiting the amount of blood sample testing at hospitals and
increasing the quality of life for
people afflicted with PKU."
Bodil Højgaard, Chairman of Danish PKU
Society.